A teen who is living right even though he is fighting cancer 

Fresh from a game of H-O-R-S-E on a toy basketball hoop in the living room, Simon Jones sits at the piano, stretches out his stick-thin legs and considers the questions about his health.
The 17-year-old fires off Nerf gun bullets along with snappy retorts.
How is he today? “Better than yesterday.”
And how was he yesterday? “Worse than today.”
A faint smile creeps up to his cheeks, and it becomes instantly clear that Simon isn’t going to play the part of suffering cancer patient. He won’t get sucked into the gloom of having a cancer so rare his oncologist thinks he is the only Omaha child with it right now. Nor will he respond to the doom about a ticking clock. The odds of surviving more than five years from diagnosis are less than 20 percent. Simon is nearing year four.
Simon is not interested in a story about what it’s like to be dying. He is, however, game for telling a story about living. About living a normal life, a full life, a thrilling life, even a boring life, because boring can be a relief from the drama of a cancer called desmoplastic small round cell tumor.
Simon wants to live his best life — and he wants you and me and everyone else to do so as well. He is preaching this gospel through a Facebook page called Simon Says: Live a Better Life. He wants people to make the most of their time on this planet — something he is trying to do.

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